September 8, Turkey Cystic Fibrosis Awareness Day, brought up the situation of many patients who have difficulty in accessing medication in our country. Unfortunately, cystic fibrosis drugs, such as Spinal Muscular Atrophy (SMA) drugs, some diabetes drugs, and some drugs used in cancer treatment, are unfortunately not covered by the state. Cystic fibrosis, which is seen in 1 in 6 thousand people in Turkey, is among the deadly genetic diseases because it affects many systems, especially the respiratory system and digestive system. However, the new generation cystic fibrosis modulator drugs, which are hope in the treatment of such a deadly disease, are unfortunately not covered by the state. Families struggling with cystic fibrosis started aid campaigns because of drug costs reaching up to 300 thousand dollars per year.
CYSTIC FIBROSIS: A FATAL GENETIC DISEASE
Cystic fibrosis, a deadly genetic disease, is unfortunately seen in 1 out of every 6 thousand people in Turkey. Race with time is very important in cystic fibrosis disease which causes infections and damage by affecting many systems, especially respiratory system and digestive system. However, cystic fibrosis modulator drugs developed against this deadly disease have been of great hope. Thanks to new generation drugs, the adult rate of cystic fibrosis disease is above 50 in America and Europe, but it remains only 7 percent in our country. In addition to all these developments, on the occasion of September 8, Cystic Fibrosis Awareness Day, public opinion was formed in Turkey to meet the mutation drugs of cystic fibrosis patients by the state.
MEDICINE COSTS 300 THOUSAND DOLLARS PER YEAR
Thousands of families, trying to make their voices heard on September 8, Turkey Cystic Fibrosis Awareness Day, demanded that the state provide medicines against cystic fibrosis disease. The new generation of cystic fibrosis modulator drugs both increase the quality of life of the patient and provide hope in the treatment of the disease. New generation cystic fibrosis modulator drug costs, reaching up to 300 thousand dollars per year, It puts families in a difficult position. Thousands of families who want to save their loved ones and children from the clutches of this disease are starting aid campaigns, as in SMA.