Many babies with Spinal Muscular Atrophy (SMA) in Turkey need expensive drugs abroad to hold on to life. The life of Yusuf Eren Gostak, who has SMA type 1, depends on expensive drugs to be brought from abroad. Speaking to the Milli Gazete, the father Yuksel Gostak stated that Yusuf Eren should have gene therapy as soon as possible for the baby to regain his health.
Babies with Spinal Muscular Atrophy (SMA), one of Turkey's bleeding wounds, are trying to hold on to life with aid campaigns initiated by their families. Yusuf Eren Gostak baby is just one of the babies with SMA. The survival of the baby Yusuf Eren, who has SMA type 1, depends on expensive drugs to be brought from abroad. Yuksel Gostak, father of Yusuf Eren, who started a charity campaign for the treatment of his child, is waiting for the support of philanthropists to meet the money needed for the drugs. In the campaign launched with the permission of the governorship, 20 percent of the required money has yet been collected, but Yusuf Eren's health Gene therapy needs to be done as soon as possible. Speaking to the Milli Gazete, father Yüksel Gostak asked the benefactors to support Yusuf Eren's campaign for the sake of Almighty Allah.
“IT IS VERY IMPORTANT THAT SUPPORT CHILDREN WITH SMA”
Stating that the baby Yusuf Eren was diagnosed with SMA type 1 when he was two months old, father Yüksel Gostak said, “As soon as we learned about our child's disease, we started the research. We learned that only in Europe and in a few countries, treatment can be given for my child to regain his health. We are fighting for the health of our child by starting a campaign with the permission of the governorship. This medicine, which will be instrumental in the healing of our child, is one of the most expensive medicines in the world. We can't afford to take this medicine. That's why it's very important for philanthropists to support children with SMA.”
“AS LONG AS YUSUF EREN CAN GET HIS MEDICINE BEFORE IT'S TOO LATE”
Yüksel Gostak talked about Yusuf Eren's health, "Our baby is only 7 months old. He can breathe on his own and can feed normally with a bottle without being connected to the device. However, my son has gradually started to lose the joints in his hand and foot muscles. But this is not so important. He can regain the muscles he has lost so far. As long as Yusuf Eren can get his medicine before it's too late. If the disease spreads to his vital organs, then it will be a big problem. If our child gets his medicine and can have gene therapy, he will be able to recover with 80-90 percent success. This hope is very important to us," he added.